Samuels Smile

Samuels Smile

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CHARITY FOR KIDS WITH RARE DISEASES

This is a dream I've had for many years, lots of people have known me for my smile. So now I feel like it's time for me to make some other kids smile.

I was born with a very rare condition called Total Intestinal Hirschsprung's Disease. I was given 3 months to live when I was born and I am now 17 making me the oldest surviving person in the UK with this disease.

Because of my disease, I live on an IV pump 18 hours a day 7 days a week which gives me my total parenteral nutrition because I cannot eat. I have had over 60 surgeries and spend most of my life in Yorkhill Hospital, Glasgow.

I never know what lies ahead for tomorrow but I live life to the full everyday and believe I am a miracle, that I'm here for a reason and I just want to make a difference.

Registered Charity Number: SC046209

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A KNIGHTSWOOD teenager with a deadly condition is setting up his own charity in a bid to help other youngsters enjoy the experience of a lifetime.
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